{"id":2618,"date":"2014-10-12T12:49:00","date_gmt":"2014-10-12T12:49:00","guid":{"rendered":"https:\/\/designedin.org\/?post_type=projects&p=2618"},"modified":"2025-09-11T13:19:54","modified_gmt":"2025-09-11T13:19:54","slug":"heroes-are-rare-as-kids-with-nf","status":"publish","type":"projects","link":"https:\/\/designedin.org\/pt-pt\/projects\/heroes-are-rare-as-kids-with-nf\/","title":{"rendered":"Heroes are rare as kids with NF"},"content":{"rendered":"\n

Neurofibromatosis (NF) is a rare genetic disease. Claas R\u00f6hl, the founder and chairman of NF Kinder, is a good friend who has a child diagnosed with Neurofibromatosis (NF). When she was a baby he started this non-profit organisation in Austria, based in Vienna dedicated to supporting individuals and their families, affected by NF. They provide resources, information, and support for those living with NF, aiming to improve their quality of life. NF Kinder is actively involved in fundraising efforts to further research and raise awareness about NF, collaborating with some hospitals such as the Medical University of Vienna, Kepler University Hospital, and Ordensklinikum Linz Barmherzige Schwestern. NF Kinder’s initiatives include fundraisers and other campaigns to support people with NF, demonstrating a commitment to making a difference in the lives of individuals affected by NF.<\/p>\n\n\n\n

In 2013 Claas asked me for help and, with my studio Claan, I developed a campaign to raise funding. This was the first of our collaboration, through out the years we have been supporting NF with campaigns, web-development and a digital platform.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n
\"\"<\/figure>\n\n\n\n

This series of posters with the slogan “Heroes are rare” (Helden Sind Selten<\/em>) were intended to communicate with children and families affected by NF. I’ve worked on this concept using a little stuffed monkey with NF (characterised by the visible nodules) so that kids would empathise and identify themselves with this superhero. I designed the prop by adapting the stuffed animal, made the photo-shooting and the graphic design. <\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

Neurofibromatosis (NF) is a rare genetic disease. Claas R\u00f6hl, the founder and chairman of NF Kinder, is a good friend who has a child diagnosed with Neurofibromatosis (NF). When she was a baby he started this non-profit organisation in Austria, based in Vienna dedicated to supporting individuals and their families, affected by NF. They provide resources, information, and support for those living with NF, aiming to improve their quality of life. NF Kinder is actively involved in fundraising efforts to further research and raise awareness about NF, collaborating with some hospitals such as the Medical University of Vienna, Kepler University Hospital,\u2026<\/p>\n","protected":false},"featured_media":2621,"template":"","meta":{"_acf_changed":true},"categories":[53],"tags":[],"class_list":["post-2618","projects","type-projects","status-publish","has-post-thumbnail","hentry","category-graphic-design-photography"],"acf":[],"yoast_head":"\nHeroes are rare as kids with NF - DesignedIn<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Heroes are rare as kids with NF - DesignedIn\" \/>\n<meta property=\"og:description\" content=\"Neurofibromatosis (NF) is a rare genetic disease. Claas R\u00f6hl, the founder and chairman of NF Kinder, is a good friend who has a child diagnosed with Neurofibromatosis (NF). When she was a baby he started this non-profit organisation in Austria, based in Vienna dedicated to supporting individuals and their families, affected by NF. They provide resources, information, and support for those living with NF, aiming to improve their quality of life. NF Kinder is actively involved in fundraising efforts to further research and raise awareness about NF, collaborating with some hospitals such as the Medical University of Vienna, Kepler University Hospital,\u2026\" \/>\n<meta property=\"og:url\" content=\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/\" \/>\n<meta property=\"og:site_name\" content=\"DesignedIn\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/designedinblog\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-11T13:19:54+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05-722x1024.png\" \/>\n\t<meta property=\"og:image:width\" content=\"722\" \/>\n\t<meta property=\"og:image:height\" content=\"1024\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@designedinblog\" \/>\n<meta name=\"twitter:label1\" content=\"Tempo estimado de leitura\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/\",\"url\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/\",\"name\":\"Heroes are rare as kids with NF - DesignedIn\",\"isPartOf\":{\"@id\":\"https:\/\/designedin.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png\",\"datePublished\":\"2014-10-12T12:49:00+00:00\",\"dateModified\":\"2025-09-11T13:19:54+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage\",\"url\":\"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png\",\"contentUrl\":\"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png\",\"width\":1820,\"height\":2580},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/designedin.org\/pt-pt\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Heroes are rare as kids with NF\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/designedin.org\/#website\",\"url\":\"https:\/\/designedin.org\/\",\"name\":\"DesignedIn\",\"description\":\"Including Children by Design\",\"publisher\":{\"@id\":\"https:\/\/designedin.org\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/designedin.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/designedin.org\/#organization\",\"name\":\"Designed In\",\"url\":\"https:\/\/designedin.org\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/designedin.org\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/designedin.org\/wp-content\/uploads\/2023\/08\/WP_logo-square.png\",\"contentUrl\":\"https:\/\/designedin.org\/wp-content\/uploads\/2023\/08\/WP_logo-square.png\",\"width\":1200,\"height\":1200,\"caption\":\"Designed In\"},\"image\":{\"@id\":\"https:\/\/designedin.org\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/designedinblog\",\"https:\/\/x.com\/designedinblog\",\"https:\/\/www.instagram.com\/designedin.blog\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Heroes are rare as kids with NF - DesignedIn","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/","og_locale":"pt_PT","og_type":"article","og_title":"Heroes are rare as kids with NF - DesignedIn","og_description":"Neurofibromatosis (NF) is a rare genetic disease. Claas R\u00f6hl, the founder and chairman of NF Kinder, is a good friend who has a child diagnosed with Neurofibromatosis (NF). When she was a baby he started this non-profit organisation in Austria, based in Vienna dedicated to supporting individuals and their families, affected by NF. They provide resources, information, and support for those living with NF, aiming to improve their quality of life. NF Kinder is actively involved in fundraising efforts to further research and raise awareness about NF, collaborating with some hospitals such as the Medical University of Vienna, Kepler University Hospital,\u2026","og_url":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/","og_site_name":"DesignedIn","article_publisher":"https:\/\/www.facebook.com\/designedinblog","article_modified_time":"2025-09-11T13:19:54+00:00","og_image":[{"width":722,"height":1024,"url":"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05-722x1024.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_site":"@designedinblog","twitter_misc":{"Tempo estimado de leitura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/","url":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/","name":"Heroes are rare as kids with NF - DesignedIn","isPartOf":{"@id":"https:\/\/designedin.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage"},"image":{"@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage"},"thumbnailUrl":"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png","datePublished":"2014-10-12T12:49:00+00:00","dateModified":"2025-09-11T13:19:54+00:00","breadcrumb":{"@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#primaryimage","url":"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png","contentUrl":"https:\/\/designedin.org\/wp-content\/uploads\/2024\/05\/Screenshot-2024-05-12-at-12.55.05.png","width":1820,"height":2580},{"@type":"BreadcrumbList","@id":"https:\/\/designedin.org\/projects\/heroes-are-rare-as-kids-with-nf\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/designedin.org\/pt-pt\/"},{"@type":"ListItem","position":2,"name":"Heroes are rare as kids with NF"}]},{"@type":"WebSite","@id":"https:\/\/designedin.org\/#website","url":"https:\/\/designedin.org\/","name":"DesignedIn","description":"Including Children by Design","publisher":{"@id":"https:\/\/designedin.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/designedin.org\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/designedin.org\/#organization","name":"Designed In","url":"https:\/\/designedin.org\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/designedin.org\/#\/schema\/logo\/image\/","url":"https:\/\/designedin.org\/wp-content\/uploads\/2023\/08\/WP_logo-square.png","contentUrl":"https:\/\/designedin.org\/wp-content\/uploads\/2023\/08\/WP_logo-square.png","width":1200,"height":1200,"caption":"Designed In"},"image":{"@id":"https:\/\/designedin.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/designedinblog","https:\/\/x.com\/designedinblog","https:\/\/www.instagram.com\/designedin.blog\/"]}]}},"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/projects\/2618","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/projects"}],"about":[{"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/types\/projects"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/media\/2621"}],"wp:attachment":[{"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/media?parent=2618"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/categories?post=2618"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/designedin.org\/pt-pt\/wp-json\/wp\/v2\/tags?post=2618"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}